oliver sacks

Dr Oliver Sacks and cancer | Day 187

You, being the reader of a science blog, have probably heard of the neurology professor, writer, and above all storyteller Dr Oliver Sacks. Even if you haven’t read one of his many fascinating books, you may perhaps have seen the film “Awakenings,” or heard his unmistakable voice on a show like Radiolab.

Today, in an essay for the New York Times, Oliver Sacks revealed that he is dying of cancer.

“It is up to me now to choose how to live out the months that remain to me. I have to live in the richest, deepest, most productive way I can.”

If there is anyone who could convey such sad news to the world with all the lucidity and strength of character, it would be Sacks. In his essay, which I encourage you to read, he talks of love, of creativity, and also of detachment. If you didn’t have much time left in this world, would you bother watching the news every night?

In his diagnosis Professor Sacks is both lucky and unlucky. He explains that nine years ago a rare tumour was removed from his eye – a melanoma. It is a cancer that develops from pigment cells called melanocytes. These cells produce the pigment melanin, the amount of which determines a person’s skin colour. However, melanocytes are also present in the lining of the eye, as well as in hair and a few other places in the body, such as the lining of internal organs and parts of the brain.

A melanoma occurs when melanocytes start to grow and divide uncontrollably. If it expands into the deeper layers of the skin, the cancerous cells can enter the bloodstream or the lymphatic system and find other organs to replicate in. This is called metastasis, from the Greek word meaning  ‘displacement’. As Oliver Sacks explains, with an ocular melanoma the chance of this happening is slight, Despite Prof Sacks  stating that the chance of this happening with ocular melanoma is only two per cent, it can actually happen in about half the cases.1 He was lucky at first, and after the removal of the tumour he had another nine years of a healthy and prolific life. Yet he chanced to be amongst the two roughly fifty percent of patients for whom the cancer metastasises – for Sacks it has meant a gradual overtaking of his liver. There is nothing that can be done except for slowing it down somewhat.

Humanity has gone great strides in treating cancers of various kinds; there will never be the proverbial ‘cure for cancer’ because there is no one cancer that requires such a cure. But metastasis is still the silent, persistent killer that looms in the background for every patient. It is the discovery that more often than not takes people from an excellent prognosis to a death sentence. Fuck cancer, yes. But fuck metastasis even more.

“My generation is on the way out, and each death I have felt as an abruption, a tearing away of part of myself. There will be no one like us when we are gone, but then there is no one like anyone else, ever. When people die, they cannot be replaced. They leave holes that cannot be filled, for it is the fate — the genetic and neural fate — of every human being to be a unique individual, to find his own path, to live his own life, to die his own death.”

— Dr Oliver Sacks

It’s not over yet. He is still finishing several new books, you know.

Show 1 footnote

  1. My thanks to commenter Elizabeth Parr for correcting this statistic, and my apologies for not catching this earlier.

4 thoughts on “Dr Oliver Sacks and cancer | Day 187”

  1. I started reading your post about Oliver Sacks with hope, especially when I read the information you included about Ocular Melanoma, (which has been absent from so many articles about him in the past days). Unfortunately, I believe you missed some of the more important facts. The 2% statistic that Oliver Sacks stated was not correct. Sadly, 50% of people diagnosed with Ocular Melanoma will develop metastatic disease, usually to the liver.

    Many people who suffer from this disease feel he has done them a huge disservice, by publicly playing down the dangers of OM. Many emails have been written to different news agencies to correct this number, however it seems no one is listening.

    I hope that I have not come across too harshly, just hoping someone will get the numbers correct.

    1. Hi Elizabeth, thank you very much for taking the time to comment! It just shows that even blogging journalists can fall down the trap of not fact-checking properly, because the statement they’re quoting is by a well-known, authoritative person. Thank you for pointing out this mistake. I have edited my post to reflect the correct statistic, and added a link to a page that explains this in more detail.

  2. Thank you so much for your correction to Oliver Sacks article. As an OM patient myself getting the correct info. Out there is very important. Very little is known publicaly about this cancer. After my treatment in Philadelphia (i am from upstate New York) on my return home my PCP told me he had never heard of it. My medical oncologist at home for follow up scans had heard of OM but really did not know much more but was willing to follow the OM Oncologists in Philadelpha’s recommendations. The office cannot even find a diagnosis code for it and always classifies as skin melanoma so I always need to stress at test time the difference. That is why it is so important to us for the correct information to be put out there. It is very difficult to be diagnosed with any cancer but especially one deemed an “orphan disease” because there is no known cure for OM mets only trials and we are losing warriors every day to this. Just a couple of weeks ago a young mother with four children died as the “trials” were no longer effective and could not keep her alive. This disease does not effect just the older generation as previously thought. Thank you for what you have done to bring this to light. The OM community I assure you will continue our fight to educate regarding this fatal disease.

Leave a Reply

Your email is perfectly safe with me.